Jake Update

Hello from Florida!!  Hope everyone had a great 4th of July, as of today its been almost 8 weeks since surgery and we have been lengthening for almost 7 weeks or 46 days which is 46mm. 
We are more than halfway there!! 

We have had two more appointments since our last post. 
On June 16th we had our second post op visit we saw that Jakes lengthening is going well, we had 28mm of new bone growth ;-)

 



 

Also on June 16 Jake received his new shoe with a smaller shoe lift!!

 

 

Our third appointment was on July 1st, Jake has 41 mm of new bone growth!!

 

 

 

Our appointment was with one of  Dr. Paley's physicians assistant (PA) Servando, he assured us that Jakes new bone growth looks great and he is also happy with Jakes physical therapy progress.  He has an 85 degree knee bend and he is able to get to 0 degree extension, both important for the muscle and joint integrity as the bone and leg lengthen.

 

 

Some other highlights:

Jake lost his first tooth.. (and about 3 weeks later his second ;)

 

Luke turned 4!!!!!

 

 

 

 

 

Please continue to keep Jake in your prayers, he is having a lot of pain with his muscles and nerves in his right leg.  His knee stretches and pin cleanings are becoming much more difficult and it takes a lot out of him to deal with the intense pain. My heart breaks when he cries and asks us why this has to happen to him. :-(

He is my hero and so very brave and strong and I tell him that 10 times everyday.   Thank you so much for all of your support, prayers, concern and love! It means so much to our whole family to be surrounded by so much love and well wishes.  We are truly blessed!!